It’s just not that pretty.
But its what I look like now.
(And yes, I do feel like my image is much more like scruffy chick just barely dried than Sinead O’Connor.)
🙂
First off: my fever broke Wed night. I took it easy yesterday, but am back to work today (tho’ likely not for the full day). Things are starting to get a bit critical and I’m needed on site.
Most importantly: on time, and unmistakably, I am losing my hair.
My advice for anyone who may read this because they are in a similar situation: if you think you are losing your hair, you aren’t.
My scalp has hurt for a few days, but that so easily could have been the fever. This morning I got up and into the shower and stepped under the water. Hands running through my hair pulled out bunches. Even though I was (sort of ) expecting this it was a very bad moment. A freak-out kind of moment.
I cut my hair short in expectation (dread) of this. I am so glad I did. Losing your hair is — and I recognize that this is entirely a me thing — losing your hair is MESSY. Seriously, it get s everywhere. Long hair would have been unbearable. Not because of the loss, but because I would have hair in my eyes ALL THE TIME or look down to see a clump just lying on my sleeve. Ugh.
Yes, this happened 30 mins ago. Mourning will occur later. For now, I am glad I listened to my intuition and prepared for this . . . I have so much hair it is going to take a bit for it all to go. I feel ‘safe’ going to work . . . but they’ll be surprised on Monday.
Sadly, on Monday afternoon I started running a fever. By Monday evening I was at 103*. I’m on mega-antibiotics with an extremely nasty sore throat and having a rough time of it.
I can’t talk, my throat hurts too much. I’m freezing cold most of the time (short hair + bare neck, +Â fever = bad combo for warmth). I sleep only an hour or two at a time then have to drink water and/or empty the bladder. I’ve also been having a problem with my breathing — I’ve stopped breathing a couple of times. Very scary. Very likely due to the swollen throat (at least, I’ve never had a problem with sleep apnea before.)
I can only eat very soft foods and liquids. Oatmeal is difficult. So, silver lining in that I’ve lost 3 pounds since the weekend.
I’m on day three of the antibiotics and I am still running a fever (granted, it’s only 99.4 now.) It just doesn’t take me this long, normally, to get well. Another subtle side effect of chemo.
Let’s keep in mind that next Wed is my 2nd session.
The difference in my health from day to day is astonishing.
I haven’t talked a lot about the spiritual side of my journey, mostly because it is intensely personal. Moreover, I’m in the middle of the journey and what I am seeing lacks perspective. But please don’t think that my priestess self is dormant, or that I have left my faith by the wayside.
Day three was a real low, and I thought I was turning a corner (positively) yesterday.
In many ways, I was.
But in the evening I developed severe pain in all of my joints — similar to what you feel with a very bad flu. We called in to the oncologist and apparently this is a typical reaction to the taxotere . . . but a few days later than usual. (Who’s special? Lisa is special!) The oncologist recommended heavy-duty painkillers, so I am now on my old friend Dialudid. For a few days.
Loopy am I.
No work for me. The upside is that I was able to go for a walk (15 min) this morning, which just helps keep the fluids moving) and I’m feeling very good. And if I am bored, I don’t really care. 🙂
It’s more than a little frightening that I feel worse as time goes by; and that this is cumulative.
Because I feel utterly wretched. I have a headache (never good) and am fatigued. The worse part is that I have an awful sore throat — like a prickly lump at the back of my throat, scraping my tongue raw.
I have a call in to my oncologist to see if there is something palliative I can take to ease the soreness. In the meantime, I’m just waiting for time to pass.
Silver lining? No nausea.
I conquered the steroids problem: 1/2 dose taken at least 1/2 hour after both anti-nausea and prilosec are taken and with food. yay.
ye gods, though, I am tired. despite a good night’s sleep.
Drinking lots of water, tea, and some juice.
So, this is what being poisoned feels like? It’s tough. Not painful, just . . . boring I guess. I make lots of typos when I write, my head isn’t ‘in the game’ and apparently I’m clearly low energy. (I usually have a big field of energy around me. I do not, now.)
I’m also cold, a lot. I’m sitting here in a warm house with a fleece hat on, my neck wrapped in a luxurious silk scarf, in a fleece jacket over a turtleneck. I’m still a bit chilly.
That went (surprisingly) well.
It turns out that the night sweats were most likely a side effect of the steroid I took (as a kind of systemic anti-inflammatory, if I understand it correctly). Bad news: I had another (via infusion) this morning, and will take the pills tonight and tomorrow. That is part of my overall regimen. Also, the steroids seems to produce a lot of stomach acid in me, which the anti-nausea meds don’t address (weird science). So I need to get an OTC drug: Prilosec.
Once we got on top of the upset stomach, all went well. No problems with the vein, or the meds going into me. My blood count looks good.
One funny thing: she gave me atavan to calm me down “this may make you feel sleepy.” Nope. I was a slightly ‘out of it’ but no where near sleep.
I’m home and taking care of odds n ends. Feel free to call, but I really don’t have a lot more to say than this, so I’ll understand if you don’t 🙂
My goals for the day: clear my desk off a bit (financial stuff), make a to-do list, go for a walk with Sasha (likely, 15 mins only), do a yoga session (even if its just half the program.
John’s planning to make shrimp and broccoli stir fry for dinner tonight. YUM.
I had a pretty bad night. I don’t know whether it was eating my chicken biryani at 7:30pm (late for me) or the medication they asked me to take an hour before bed OR its interaction with the valerian root I took an hour before bed as a precaution . . . but I woke up at 1:45am in a sweat with a very upset stomach (acid). I didn’t feel like I was running a fever, but I was soaked. It was quite uncomfortable.
So I got up for awhile, drank a couple of glasses of water to flush the tummy, reassured Sasha that it wasn’t time to get up, and eventually went back to bed, having lost an hour.
I’m all slept out now, and feeling better. Moderately stressed about chemo later today, but that feels ‘normal’.
This is the image I am carrying with me today:
artist unknown, from my files.
J. will be twittering at http://twitter.com/pitchwife. You do not need to sign up to read the twitters, nor an account to get to that webpage.
Thanks for all of your good thoughts, prayers, warm wishes, and energy. If you need to put an intention behind it, please concentrate on the experience being as pleasant as possible with minimal (or no!) side effects.
Quick update: due to a scheduling error, my chemo is postponed until Friday morning. Tres tedious, but part of the whole ‘live with uncertainty’ lesson i’m apparently supposed to be learning.
Yesterday I went and got my hair cut.
I started out like this:
Went through this:
And ended up like this:
and this:
I’m feeling very cute. 🙂